YAHOO FORUM IS CHANGING Yahoo has decided to change the format of its groups. All posts must be submitted via email and the Files feature will be removed. While the group will still exist, we have created a new Google group that still provides the threaded message format, and new files are added via attachments to posts. Check out the new group using the links on the right sidebar.Read More →

We just added two files to the Resource Library: The 2019 NCCN Thymic Guidelines Exercising the Phrenic nerve to help restore function.Read More →

Because Yahoo will be closing most of the features of Groups, we will be shifting the posts of new files into the Foundation website.  Check the Foundation website at, under Patient Resources, Research Library.Read More →

So far I’ve been very fortunate compared to a lot of thymus carcinoma patients.  In March 2019 I was have trouble taking a deep breath, so my doctor ordered a CAT scan thinking I might have lung cancer.  I then had a CAT scan with dye and then a PET scan.  The PET scan showed two spots around the thymus and one spot on what they thought was my lung.   I was sent to a cardiac surgeon.  They then ordered a biopsy on the spot on my lung and it was cancerous.  So we scheduled surgery to remove everything.  On May 8, 2019 they openedRead More →

I am 37 years old. I went to the ER with chest pain and a CT indicated that I had an anterior mediastinal mass. I saw many doctors and even went to Cleveland Clinic. Several doctors told me to watch and wait. My mass grew 3 cm in just a few weeks. I finally convinced cardiothoracic surgeon at Christ Hospital to remove it. I just learned that the pathology report indicates I had a B1 thymoma. The surgeon is convinced that he removed the entire mass and that chemo/radiation is not necessary. I found out that doctor Loehrer at IU specializes in thymic cancer. IRead More →

Jason Dookhie (#TeamJason) Our fifteen year-old son Jason was diagnosed with Thymic Carcinoma in January 2016. Jason is a remarkably strong person and handled the initial shock fairly well. Jason received 8 chemotherapy treatments at Cohen’s Children Hospital (LIJ) in New Hyde Park NY under the care of Dr. Carolyn Fein-Levy. There was a significant reduction in the tumor’s size at a few treatments and the tumor was less active. While this was great news, his doctors didn’t recommend surgery at that time, but we decided to get a second opinion.  We travelled to Pittsburgh to see a doctor that specializes in robotic thoracic surgery. We were hoping that Dr.Read More →

Hello, My name is joan fitzgerald, I’m a 35yr old Caucasian female with a diagnosis of malignant thymoma with major indentation of the right atrium. The tumour is extending from the left pulmonary artery effectively surrounding the svc, occluding the innominate and involving the right superior pulmonary vein. I was diagnosed July 2015 and I had a good response to 6 cycles of chemotherapy cisplatin and etoposide with an apperant good response, followed by 24 fraction of radiotherapy. I recently undergone surgery where the cardiothoraic surgeon failed to debunk or resection the mediastinal  mass as it was adhering the RA/svc junction invading into the cardiacRead More →